

You Can Live Well With Lewy Body Dementia: #LivingWellWithLBD
In a recent the ABC interview with Robin Williams’ widow, Susan, it was revealed that an autopsy showed Robin Williams had Lewy Body Dementia (LBD). In the interview, Susan says: “If Robin was lucky, he would've had maybe three years left. And they would've been hard years. And it's a good chance he would've been locked up.” This is probably what her doctors told her, but this is not a reality for most people with dementia or Lewy Body Dementia. When we frame dementia in this


5 Things Wrong With The Focus on Lewy Body Dementia as Robin Williams' "Reason" for Death By Suicide
I just saw this headline today: "Robin Williams driven to suicide by Lewy Body Dementia." I have so many issues with this and I wanted to share a few of the problems this headline brings up in our culture today. [Image: Rev. Katie Katie and her Mom working on an art project made to be accessible for the stage of Lewy Body Dementia Carol had at the time, in 2011.] Many of you may know that my Mom has been living with Lewy Body Dementia for eight years now and I live with menta